Thursday, April 22, 2010

So They Say It's Your Birthday

So this nightmare started when I was 52. Today I am 55, and as my sister reminded me, just 5 years away from that coveted senior citizen discount. Many days I feel 65.

Am I better? Yes, I guess I am...much more higher functioning than the past three birthdays. My doctor ordered IV Glutathione which is used for Parkinson's patients to clear toxins. They say the people with Parkinson's feel an almost immediate decrease in symptoms....less brain fog, better muscle and nerve function. For me it really seems to have helped clear the neurotoxins from my system, including my constant Nemesis, my left cranial nerve. I was hesitant to start doing Glutathione, as it's one more thing I am putting in my body.

I am a Chronic Lyme Disease Patient. Here is what I currently take everyday in order to be able to function, including typing this blog.

Doryx (Time Released Doxycycline) 300mg/day
Clarimycin (Biaxin) 1000mg/day
IV Glutathione 2 grams/push 1x a week
Nystatin - 6 pills a day
Estradiol
Prometrim
Magnesium 500mg/day
VSL#3 Probiotic 2x/day
Theralac Probiotic 2x/day
S. Boulardi Probiotic 2x/day
CoQ10 2x/day
B12 Shots 2x week
B6 1x/day
Lunesta as needed for sleep
Advil and Tylenol for pain
Vicoprofen as needed for pain
Daily Multivitamin packet (5 pills)

It's a heavy load and alot to remember to take; much of it has to be spaced out around the antibiotics. This is a pretty typical regimen for someone like me. Before getting sick I took a vitamin and maybe an Advil from time to time. This has taken some getting used to.

So today is a beautiful day. I share my birthday with Earth Day and have to wonder about the huge contradiction in all of that. But I am grateful I can go outside for a walk, and enjoy the sunshine and fresh air and go to dinner with my family. Last year, I spent my birthday in bed.

Sunday, April 4, 2010

Easter

The Biaxin and Doryx combo must be working. I have had 3 really good days, and today seems as if I might be good as well. If you read this blog, you know I tend to keep track of how many calendar holidays I have felt so sick, I couldn't and didn't even want to think about it.

Holidays have become just another day to get through, trying to push through the symptoms so my family can have their holidays. Most times I just can't wait until it's time to go to bed so I can shut my eyes, and just forget about it until the next morning when I wake up to the symptoms all over again.

This has been a life changing experience for me. I hope I am getting better, and can stay better. I have relapsed before, and know the incidence of another relapse is very high once antibiotics are removed from the equation.

But today is another beautiful sunny day here in the northeast. I will, as I have always done in these last 3 years, take each day as it comes, have no expectations, accept disappointment and try to do what I can do today.

Happy Easter. Happy Spring.